Office of Zhejiang Province three kinds of rare diseases will be included in

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Zhejiang Province, human resources and Social Security Bureau of medical insurance service in Shanghai on Friday, "workshop on rare diseases and medical problems" revealed that Zhejiang Province rare diseases has been developed to strengthen operational system of health care work, moving through a public process.

"Workshop on rare diseases and medical problems" by Shanghai rare disease Foundation and the society, jointly organized by the Shanghai medical insurance.

Interface reporter in Zhejiang Province, found on the website of the Office, on November 10, the society Department of Zhejiang Province, the Home Office, Department of finance and health planning Commission jointly announced that the Zhejiang Provincial human resources and social security of 4 sectors, such as notification of work on strengthening the medical security of rare diseases (draft for soliciting opinions), for public comment, deadline for applications is November 15.

The notification clear, rare disease medical guarantees disease species range provisional for Gaucher's disease, and gradually frozen syndrome and benzene acetone urine syndrome, guarantees object for: participate in Zhejiang Province basic medical insurance, get Zhejiang Province household full 5 years of patients; or participate in Zhejiang Province basic medical insurance, age discontent 5 age, but its parents party get Zhejiang Province household full 5 years of Zhejiang Province household patients.

Meanwhile, Zhejiang Province will also establish the diagnosis of rare diseases patients and registration system. Belonging to guarantee disease patients may be diagnosed to the notification specified billion yuan, with hospitals proving domicile certificate issued by civil affairs departments registered, shall review once a year.

Notify also clear, rare disease in Zhejiang province health care to basic health care, sickness insurance and Medicaid shared resolve the compliance cost of layer by layer, rare disease patients in basic medical reimbursement preservation and catastrophic illness after the remaining medical costs of compliance, meets the conditions for medical assistance, medical assistance and special relief. The remaining part of the cost, arranged by financial funds, be supplemented by the province through the home relief channels.

Such notification will be implemented with effect from January 1, 2016. Nanjing today s trial for child abuse by the mother